Living in the Present While Facing Dementia’s Future
Living in Today While Knowing What’s Ahead
Living With What’s Coming
There’s a quiet tension in this experience that doesn’t always get named.
Part of you is here.
In today.
In this moment.
In what’s happening right now.
And part of you is somewhere else.
Thinking about what’s ahead.
What might change.
What you may have to face later.
You can feel both at the same time.
You might be sitting with your loved one,
having a normal moment,
and still feel something underneath it.
A knowing.
A sense that this won’t always look like this.
That things are shifting.
Even if slowly.
And that awareness can change how the moment feels.
It can make it harder to settle.
Harder to fully relax into what’s here.
Because part of you is already bracing for what’s coming.
You might notice thoughts like:
“I should appreciate this more.”
“I don’t know how many moments like this we have left.”
“I should be more present.”
But instead of helping, that pressure can make it harder.
Because now you’re not just in the moment.
You’re evaluating it.
Holding it tightly.
Trying not to lose it while it’s still here.
Or the opposite can happen.
You pull back.
You stay a little guarded.
A little distant.
Because letting yourself fully feel what’s here also means feeling what could be lost.
So you move back and forth.
Trying to be present.
Getting pulled into the future.
Trying again.
And wondering why it feels so hard to just be here.
But this isn’t a focus problem.
It’s not a mindset issue.
It’s what happens when you’re living inside ongoing change.
You are holding two realities at the same time:
What is here now
And what you know is coming
That’s not something the mind resolves easily.
It’s something you learn to live alongside.
Staying steady here isn’t about choosing one over the other.
It’s not about forcing yourself to “stay present.”
And it’s not about ignoring what’s ahead.
It can start with allowing both to exist.
“This moment matters.”
“And this is changing.”
Without needing to fix either one.
Without needing to hold it perfectly.
You may not always feel fully present.
You may not always feel at peace in these moments.
But that doesn’t mean you’re doing it wrong.
It means you’re aware.
And awareness in this kind of experience can feel heavy.
If this feels familiar, nothing is wrong with you.
You’re not failing at being present.
You’re living inside something that asks you to hold what is…
and what isn’t here yet.
At the same time.
And that’s not easy to carry.
You don’t have to carry it perfectly.
And you don’t have to carry it alone.
Other ways to stay supported this month:
Community: Emotions & Dementia Facebook group. A private space to share, connect, and be around others who understand → Click Here
Grieving the Diagnosis: A guided support experience for adult children and partners navigating the emotional reality of dementia. If you’re wanting more consistent support and a place to go deeper, this is where that work happens. Learn more →
Connection Hour: Free weekly support, Tuesdays at 11 AM ET. A space to slow down and talk honestly about the emotional side of this experience→ Join Here
